Idaho summers are awesome...I have actually gotten to wear some of my sweatshirts again. It is so nice to be able to spend time with Ben's family. It feels very celebrity-ish having a winter home in Saint George and a summer home in Idaho. I definitely enjoy it.
As I mentioned earlier, Ben has been coughing/choking a lot. Sometimes it is on fluids, sometimes it is on saliva, and sometimes there doesn't seem to be a reason. It takes a lot out of him to be coughing so much and neither of us has been sleeping much. He recently started some new medication that seems to be calming things down. Emmy becomes very territorial of Ben when he is choking. She asks him if he's okay, gets him water, hands him his "pickle" (a breathing tool Ben uses), and forces numberless cough drops into his mouth. It is so sweet to see her concern for him and watch her take care of him.
The feeding tube is going well. We are also in the process of getting a speech-assistive device called a Dynavox. Basically, it is a computer that will speak for him and is controlled by the movement of his pupils.
Some quick photos from the last month...
Swinging with Grandpa Mike. Unfortunately, Emmy has started wearing her helmet ALL the time again.
Bon Appetite! This is what we put in Ben's feeding tube. Hooray for no dirty dishes after his meals!
My new epitome of laziness...taping Ben's feeding tube to his shirt
while I feed him so I don't have to hold it. Good thing my husband's a good sport, and my dad keeps lots of medical tape at his office.
I love the view of the Idaho Falls Temple. Emmy does too.
Helping dad get a drink after a coughing fit.
Emmy has graduated from her tricycle to a bike with training wheels. She loves riding it and begs me to run in front of her while she tries to catch me. Isn't the point of her bike to wear her out, not me?
For family night this week, we went to Chic-Fil-A's Pirates and Princess night with free princess hairstyling and face painting. Emmy loved having her hair done until they burned her ear with the curling iron. I wish they would have done my hair too. As my niece Lily so tactfully puts it, "Aunt Jena, your hair is always in that ponytail."
We are prepping for the Fourth of July with sparkler practice. A good idea since appropriate sparkler use does not run in Emmy's genes... as an eight-year-old I dropped my sparkler once and burned a huge chunk of grass in my parents' front yard.
Apparently my ability to light sparklers ranks right up there with my ability to hold on to them. All these matches for only two or three sparklers.